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Maes Al-Qedra, gadis berusia empat belas tahun, menderita sejak lahir kondisi genetik langka dan serius yang dikenal sebagai Xeroderma Pigmentosum , yang membuat kulitnya sangat sensitif terhadap sinar matahari dan menempatkannya pada risiko tinggi terkena kanker kulit, di samping komplikasi yang memengaruhi penglihatan, perkembangan kognitif, dan pendengarannya. Selain rasa sakit akibat penyakitnya, Maes menghadapi perjuangan berat sehari-hari berupa perundungan dan tatapan orang-orang di...
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