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Imagine ter bolhas e feridas todos os dias. Imagine sentir dor ao segurar um lápis ou encostar numa colher. Essa é a realidade cruel de uma criança com epidermólise bolhosa, uma das doenças raras mais dolorosas que existem. A pele dessas crianças é extremamente frágil — qualquer atrito pode abrir feridas profundas. Por isso, vivem enfaixadas, longe do toque, da brincadeira, do carinho espontâneo. Mas isso não deveria ser assim. Famílias inteiras lutam junto. Fraldas, pomadas, gazes especiais,
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A Kamilly enfrenta a Epidermólise Bolhosa todos os dias. Uma doença rara que deixa a pele extremamente frágil e causa dores constantes. Agora, além da luta pela saúde, sua família enfrenta grande dificuldade até para ter comida na mesa. 🍽️💔 Você pode ajudar a mudar essa realidade hoje. Doe alimentos ou qualquer valor e leve esperança para essa guerreira. 📌 PI❎❎👉🏻 aadora@aadora.org.br
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oiii pessoal tô pedindo um ajudar pra mim sobrinha .. ela nasceu com essa doença epidermólise Bolhosa e precisa de curativos infelizmente a prefeitura negou de da os curativos... quem pode ajudando compartilhar tbm é uma ajuda boa pix 105.942.954 32
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