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Sou portadora de síndrome rara neurodegenerativa congênita chamada de Síndrome de Arnaldo Chiari e também é conhecida como Má Formação de Chiari. Reaprendi a fazer TUDO, tenho dormência constante nos 4 membros que é uma das sequelas da doença. eu era muito vaidosa e amava demais meus cabelos, ele sempre foi no tom de loiro natural e muito liso, entao fazia mechas para ficar mais loira. cheguei a tomar 30 comprimidos ao dia de medicações para lidar com as dores. #viraliza #bumbumba #DEUS #chiari
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Nunca pensei em postar esse vídeo 3 dias após a cirurgia ainda no hospital, tomando muitas medicações, dois banhos ao dia, um curativo ao dia, e uma visita do neurocirurgião e seu interno de neurocirurgia. Eu venci, mesmo quando tudo dizia que não ia dá certo Deus veio e disse eu sou Deus de milagres e você é um desses milagres. #Cantakwai #viraliza #maformacaodechiari #DEUS #chiari
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