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Madre e Hija en Movimiento: Bailando con el Corazón” En este video compartimos un momento muy especial: Ámbar y yo bailando juntas, demostrando que la Espina Bífida no es un límite para disfrutar de la vida. Cada paso es una celebración de superación, amor y alegría. Ámbar nació con Espina Bífida, pero con esfuerzo y fortaleza, sigue enseñándonos que todo es posible. Esperamos que este baile llene tu corazón de inspiración y esperanza #mielomeningocele #MadreEHija #BailandoConAmor #superacion
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Você sabe qual a força da representatividade? Ella Rogers tem dois anos e anda de cadeira de rodas porque nasceu com espinha bífida, uma condição genética que causa o fechamento incompleto da coluna do bebê e o impede de andar. No caso da menina, a condição paralisou do meio do peito para baixo. Recentemente, Ella ganhou de sua mãe uma Barbie em uma cadeira de rodas azul. A reação de surpresa e felicidade da menina foi gravada pela mãe e postada na internet. O vídeo viralizou. #AquiGeralBrilha
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espinha bífida é um dos defeitos mais sérios defeitos do tubo neural, compatível com vida longa. É uma das anomalias congênitas mais comuns, com incidência, nos Estados Unidos, de cerca 1/1.500. É mais frequente na região torácica inferior, lombar ou sacral, e geralmente se estende por 3 a 6 segmentos vertebrais.
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