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O Heitor nasceu com uma condição genética chamada Atrofia Muscular Espinhal . Por conta disso, ele precisava tomar o remédio mais caro do mundo, que custa cerca de R$8 milhões. 🎥 @iarasanny
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A atrofia muscular espinhal é uma doença rara, que afeta principalmente as células nervosas da medula espinhal. Embora não haja cura, existem tratamentos que podem ajudar a melhorar a qualidade de vida dos pacientes. É importante que a sociedade e os órgãos de saúde pública estejam cientes dessa condição e apoiem a pesquisa e o desenvolvimento de novas terapias. Juntos, podemos fazer a diferença na vida das pessoas que lutam contra as doenças raras. #doencasraras #labcenterfranca #
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